Thursday 15th Nov 2007

Evening Folks,

Tomorrow Sai wil be going to a hospice.We decided that would be the best thing to do.The nurses/staff in Tallaght have been great but he will get better specialist care in the hospice.It's Our Lady's Hospice at Harold's Cross in Dublin.We were talking about Sai coming home at the beginning of the week and the social worker at the hospital was starting the ball rolling on that-getting a bed etc put in here and everything Sai would need.I talked to my GP about it-he told me that Sai's drains would be removed before coming home and wouldn't get the IV nutrients or any IV treatment,so that just isn't happening-he needs the drains or his abdomen will probably get huge again (it's still distended and doesn't look like it will go down.The blockage in his intestine is causing that and there's a lot of air in there-you would think it would be easy to get that out but it just isn't.)Dr Higgins the Palliative Care doctor in Tallaght is the consultant at the hospice as well so Sai and him know each other-he's very nice.There are only 30 odd beds in the hospice and Sai has managed to get his own room which he is happy about.It's on ground level and has gardens around it-we'll see it tomorrow.

Sai's antibiotics finished today.Dr Higgins told us the other day the infection Sai had was peritonitis-we hadn't been told that before but i suppose we would just have worried more-it's a pretty serious infection but Sai fought it..Dr McDermott was in to see Sai too but Sai couldn't really remember what he said as he was so drowsy.My GP also told me the other day that he was astounded that Sai had survived his last operation! Sai is just so determined in his head.I think he has amazed everyone.

So many friends and family of friends are praying for him,it's great and uplifting to know that.I told the boys about their dad going to the hospice-they hadn't heard of a hospice before which isn't surprising.They were told before that he might not get better but hope and staying positive has always been top of the list.You can't ever give up hope,of course you can't but my GP thinks i haven't accepted things because i still have this hope-well sorry but i just don't get that.OK that's the science outlook but if you didn't have hope then you would be as well being in a heap in the corner!

We'll see how tomorrow goes ,night.E. x